This is the sort of every day stuff our HeartKid shouldn’t be able to do. He has severe leakage of his aortic valve and mild left ventricular hypertrophy. He’s had 2 open heart surgeries already and we’re waiting on the next one, which is going to be huge.

One of the absolute best things that has come out of our family living with Congenital Heart Disease, is the fact that we tend to live with a mentality of 'why not?' rather than think of all the reasons why we shouldn't do something. It's like since we came so close to losing our HeartKid, my husband and I have subconsciously decided to make the most of life while we've got it.