Here you’ll find stories of my remote for-purpose business founder, family-loving, grant-seeking, adversity-facing life.
‘Tis the good, the bad and not too much ugly.
Hey, you awesome go-getter!
Why it’s important to avoid burnout as a business owner
The biggest personal challenge I’ve had with the sacrificial nature of being a business owner is learning not to keep burning out.
A collective sense of expectation
There is something about a new year. I know it’s just another day, which technically doesn’t change anything from yesterday, yet there is still something undeniably different about the first day of a new year. I’m wondering whether it’s because there is an underlying sense of expectation. That something will be different. That things will change.
Surreal and heartbreaking school run conversations with my HeartKid
We were doing the school drop off yesterday, when our HeartKid randomly came out with:
“My biggest worry is my heart surgery, Mum. I hope I die before my surgery so I can go to heaven and have a heart that doesn’t need fixing anymore.”
And his eyes welled up with tears, with a face full of sadness.
My go to song
When things get too overwhelming and I need something to help me get back up again, this is my go to song.
Diagnosis
Diagnosis of a critical and chronic illness is an incredibly traumatic thing to experience, and I still find it hard to write about. Somehow, my husband and I managed to put this video together for our HeartKid’s dedication in 2014, which coincided with his 1st Birthday. This video will give you a good insight into the trauma of diagnosis and how life was for us 5 years ago.
Why a blog?
For 5 years, I’ve been struggling to cope with our 5-year-old son’s heart condition. Yet now it feels like I’m moving into a new stage. A stage filled more with hope, story sharing and helping others, rather than the all-consuming internally focussed survival mode that I was thrown into 5 years ago. My hope, really, is that by sharing this part of my story, other families facing chronic critical illness may realise they’re not alone.