Here you’ll find stories of my remote for-purpose business founder, family-loving, grant-seeking, adversity-facing life.
‘Tis the good, the bad and not too much ugly.
Hey, you awesome go-getter!
When life gives you lemons - Congenital Heart Disease, Mental Health challenges & Chronic Pain
Most people know one of my ‘lemons’ is the Congenital Heart Disease (CHD) our oldest son was born with. But this past year, we’ve had another health-related lemon land in our court.
When your community helps you survive
The importance of community helping people survive tough situations has been reiterated in a huge way at my local level this past week. When tragedy strikes, it’s quite powerful seeing people band together - to support each other, to pray together, to cry together, to sit and chat. The importance of the time we have right now becomes so real.
Both short term and long term support is needed when crisis hits. Because crisis doesn’t last forever, but the ramifications and flow on effects often do.
Why do we feel the need to speak?
What is it about our Australian culture that make us feel the need to speak? What is wrong with silence? Or just a hug? Or an ‘I’m so sorry’? Why do we feel the need to make people feel better, when there is nothing that can actually make them feel better at that particular moment?
What to say, what not to say
Is the answer to run away and not say anything to someone in crisis? Avoid them at all costs? Never talk about their illness, sick child or family member? NO! People in crisis NEED YOU!
Small things can be powerful things
Today is R U OK? day. It’s such a great initiative which encourages people to stay connected and have meaningful conversations. I don’t think you should ever underestimate the power of doing something small for someone who is struggling. Small things can be powerful things.
Why a blog?
For 5 years, I’ve been struggling to cope with our 5-year-old son’s heart condition. Yet now it feels like I’m moving into a new stage. A stage filled more with hope, story sharing and helping others, rather than the all-consuming internally focussed survival mode that I was thrown into 5 years ago. My hope, really, is that by sharing this part of my story, other families facing chronic critical illness may realise they’re not alone.